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Tuesday 29 September 2020
The grant of €100 per applicant is available from Cystic Fibrosis Ireland.
Benat Broderick, who has cystic fibrosis, has been cocooning at home and says he’s grateful for the time to focus on his health and wellbeing.
A patient with cystic fibrosis, for whom nutrition is key to health, shares her hospital food experience.
The 65 Roses fundraising campaign would usually see community-hosted events take place across the country.
Patricia Duffy-Barber, Chairperson of Cystic Fibrosis Ireland says people CF are nervous, but they’re doing their best to get through.
Trevor O’Sullivan documents his challenges as a person with CF during the Covid-19 crisis.
Benat Broderick writes about his concerns regarding Covid-19.
Strict new Covid-19 measures have been announced for the two counties – here’s what you need to know.
Over 660 new patients contracted the antibiotic-resistant bowel bug CPE from January to November – with 13 outbreaks currently across the country.
About 1,200 children and adults have Cystic Fibrosis in Ireland.
Cystic fibrosis is a genetic disease that affects around 1,300 children and adults in Ireland.
The couple appealed the decision to refuse them residency which prompted intervention from a government minister.
The couple are holding out hope that Australia’s Immigration Minister will intervene.
‘I find these interventions by members of the public quite insulting and extremely embarrassing,’ writes cystic fibrosis advocate, Benat Broderick, 15.
Greg Foley had to get a double lung transplant after complications from his Cystic Fibrosis.
It was scary starting a drug trial for my cystic fibrosis. We didn’t know how I would react but thankfully my breathing and energy levels improved, writes Benat Broderick (15).
Luke Doherty was added to the transplant waiting list when one of his lungs collapsed.
Patients in Ireland are being encouraged to ask their doctors about clinical trials.
Tinsley was on the lung transplant waiting list in the US for nine months.
Orla Tinsley told RTÉ’s Six One News that she feels like a “new woman”.
Darcy Grainger is one of about 1,300 people in Ireland who have cystic fibrosis.
Ireland has more cases of cystic fibrosis per head of population than any other country.
One mother spoke to TheJournal.ie about the battle her child with Cystic Fibrosis has faced.
Children between the ages of six and 11 will now be able to access the drug in Ireland after yesterday’s announcement.
The journalist and Cystic Fibrosis activist has long campaigned for more awareness about the condition.
Christmas can be a tough time for those who have lost a loved one.
Tinsley spent the last number of days on life support in a New York hospital.
Orla Tinsley has been instrumental in raising awareness of gaps in CF services over the years.
HSE and Vertex employees were working long hours behind the scenes to secure the historic agreement.
A fundraiser has been set up to help Irish journalist Orla Tinsley raise money for a lung transplant aftercare.
A deal on the cystic fibrosis drug was finally reached last month.
Cystic fibrosis can be a life-changing condition for entire families.
Orkambi – as well as the drug Kalydeco – will now be available for CF sufferers from 1 May.
Simon Harris made the announcement today in the Dáil.
Shauna Morrissey has cystic fibrosis and is campaigning for an opt-out organ donation system.
Helen Taylor died while waiting for a double lung transplant in 2014.
Health Minister Simon Harris said that he wants a good deal for the taxpayer and, most importantly, for patients.
Orkambi is estimated to cost €159,000 per patient.
The government is making a last-ditch attempt to settle a better price for Orkambi.
The drugs are currently too expensive for the HSE to make available to patients.
Earlier, hundreds of people attended a protest outside Leinster House calling for action on the drug.
ENGLAND HAS INTRODUCED new rules that could see people receive fines of up to £10,000 if they fail to self-isolate.
This means that anyone who has tested positive or has been a close contact of a Covid-19 case and fails to quarantine could receive a hefty penalty.
There have been some calls for a similar system here too, to prevent the spread of the virus and to stop any flouting of rules.
So today we want to know: Should people who fail to self-isolate be fined?
Poll Results:
Share your story: voices@thejournal.ie
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