# cystic-fibrosis - Thursday 8 April, 2021
# 65 Roses Day
# 65 Roses Day
Ahead of 65 Roses Day tomorrow, med student Bevin Murphy outlines the tough year she’s had as a person with CF, and how a new drug has changed everything.
# cystic-fibrosis - Monday 4 January, 2021
# Still Waiting
# Still Waiting
Expert says linking IVF funding with the commencement of legislation is a ‘way of putting it off’.
# cystic-fibrosis - Tuesday 4 August, 2020
# SUPPORTS
# SUPPORTS
The grant of €100 per applicant is available from Cystic Fibrosis Ireland.
# cystic-fibrosis - Tuesday 16 June, 2020
# Covid-19
# Covid-19
Benat Broderick, who has cystic fibrosis, has been cocooning at home and says he’s grateful for the time to focus on his health and wellbeing.
# cystic-fibrosis - Saturday 30 May, 2020
# Cystic Fibrosis
# Cystic Fibrosis
A patient with cystic fibrosis, for whom nutrition is key to health, shares her hospital food experience.
# cystic-fibrosis - Tuesday 21 April, 2020
# Donations
# Donations
The 65 Roses fundraising campaign would usually see community-hosted events take place across the country.
# cystic-fibrosis - Friday 10 April, 2020
# 65 Roses Day
# 65 Roses Day
Patricia Duffy-Barber, Chairperson of Cystic Fibrosis Ireland says people CF are nervous, but they’re doing their best to get through.
# cystic-fibrosis - Friday 3 April, 2020
# Cystic Fibrosis
# Cystic Fibrosis
Trevor O’Sullivan documents his challenges as a person with CF during the Covid-19 crisis.
# cystic-fibrosis - Saturday 14 March, 2020
# Covid-19
# Covid-19
Benat Broderick writes about his concerns regarding Covid-19.
# cystic-fibrosis - Friday 17 January, 2020
# Record Breaking
# Record Breaking
Over 660 new patients contracted the antibiotic-resistant bowel bug CPE from January to November – with 13 outbreaks currently across the country.
# cystic-fibrosis - Friday 13 December, 2019
# Breakthrough
# Breakthrough
About 1,200 children and adults have Cystic Fibrosis in Ireland.
# cystic-fibrosis - Tuesday 3 December, 2019
# Cystic Fibrosis
# Cystic Fibrosis
Cystic fibrosis is a genetic disease that affects around 1,300 children and adults in Ireland.
# cystic-fibrosis - Saturday 6 July, 2019
# Down Under
# Down Under
The couple appealed the decision to refuse them residency which prompted intervention from a government minister.
# cystic-fibrosis - Tuesday 7 May, 2019
# Victoria
# Victoria
The couple are holding out hope that Australia’s Immigration Minister will intervene.
# cystic-fibrosis - Monday 29 April, 2019
# Opinion
# Opinion
‘I find these interventions by members of the public quite insulting and extremely embarrassing,’ writes cystic fibrosis advocate, Benat Broderick, 15.
# cystic-fibrosis - Sunday 31 March, 2019
# Second Chance
# Second Chance
Greg Foley had to get a double lung transplant after complications from his Cystic Fibrosis .
# cystic-fibrosis - Monday 28 January, 2019
# Opinion
# Opinion
It was scary starting a drug trial for my cystic fibrosis. We didn’t know how I would react but thankfully my breathing and energy levels improved, writes Benat Broderick (15).
# cystic-fibrosis - Sunday 6 January, 2019
# Cystic Fibrosis
# Cystic Fibrosis
Luke Doherty was added to the transplant waiting list when one of his lungs collapsed.
# cystic-fibrosis - Monday 3 December, 2018
# Better Care
# Better Care
Patients in Ireland are being encouraged to ask their doctors about clinical trials.
# cystic-fibrosis - Tuesday 18 September, 2018
# Warrior
# Warrior
Tinsley was on the lung transplant waiting list in the US for nine months.
# cystic-fibrosis - Saturday 14 April, 2018
# Orla Tinsley
# Orla Tinsley
Orla Tinsley told RTÉ’s Six One News that she feels like a “new woman”.
# cystic-fibrosis - Friday 13 April, 2018
# 65 Roses Day
# 65 Roses Day
Darcy Grainger is one of about 1,300 people in Ireland who have cystic fibrosis.
# cystic-fibrosis - Sunday 25 February, 2018
# Cystic Fibrosis
# Cystic Fibrosis
Ireland has more cases of cystic fibrosis per head of population than any other country.
# cystic-fibrosis - Sunday 11 February, 2018
# Waiting Lists
# Waiting Lists
One mother spoke to TheJournal.ie about the battle her child with Cystic Fibrosis has faced.
# cystic-fibrosis - Thursday 11 January, 2018
# Cystic Fibrosis
# Cystic Fibrosis
Children between the ages of six and 11 will now be able to access the drug in Ireland after yesterday’s announcement.
# cystic-fibrosis - Tuesday 26 December, 2017
# Orla Tinsley
# Orla Tinsley
The journalist and Cystic Fibrosis activist has long campaigned for more awareness about the condition.
# cystic-fibrosis - Saturday 23 December, 2017
# Anam Cara
# Anam Cara
Christmas can be a tough time for those who have lost a loved one.
# cystic-fibrosis - Thursday 21 December, 2017
# Donor Card
# Donor Card
Tinsley spent the last number of days on life support in a New York hospital.
# cystic-fibrosis - Wednesday 20 December, 2017
# Orla Tinsley
# Orla Tinsley
Orla Tinsley has been instrumental in raising awareness of gaps in CF services over the years.
# cystic-fibrosis - Saturday 26 August, 2017
# Cystic Fibrosis
# Cystic Fibrosis
HSE and Vertex employees were working long hours behind the scenes to secure the historic agreement.
# cystic-fibrosis - Monday 24 July, 2017
# Cystic Fibrosis
# Cystic Fibrosis
A fundraiser has been set up to help Irish journalist Orla Tinsley raise money for a lung transplant aftercare.
# cystic-fibrosis - Sunday 7 May, 2017
# Cystic Fibrosis
# Cystic Fibrosis
A deal on the cystic fibrosis drug was finally reached last month.
# cystic-fibrosis - Thursday 13 April, 2017
# 65 Roses Day
# 65 Roses Day
Cystic fibrosis can be a life-changing condition for entire families.
# cystic-fibrosis - Wednesday 12 April, 2017
# End Of A Long Road
# End Of A Long Road
Orkambi – as well as the drug Kalydeco – will now be available for CF sufferers from 1 May.
# cystic-fibrosis - Tuesday 11 April, 2017
# Deal Reached
# Deal Reached
Simon Harris made the announcement today in the Dáil.
# cystic-fibrosis - Monday 3 April, 2017
# Organ Donation
# Organ Donation
Shauna Morrissey has cystic fibrosis and is campaigning for an opt-out organ donation system.
# cystic-fibrosis - Sunday 2 April, 2017
# Organ Donation
# Organ Donation
Helen Taylor died while waiting for a double lung transplant in 2014.
# cystic-fibrosis - Monday 6 March, 2017
# Orkambi
# Orkambi
Health Minister Simon Harris said that he wants a good deal for the taxpayer and, most importantly, for patients.
# cystic-fibrosis - Tuesday 21 February, 2017
# Cystic Fibrosis
# Cystic Fibrosis
Orkambi is estimated to cost €159,000 per patient.
# cystic-fibrosis - Sunday 18 December, 2016
# Health
# Health
The government is making a last-ditch attempt to settle a better price for Orkambi.
Cloudy and cooler; rain this afternoon
Max: 18 °C
Min: 9 °C
Partly sunny with a couple of showers
Max: 14 °C
Min: 7 °C
Rain at times
Max: 13 °C
Min: 6 °C
