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Dublin: 10°C Tuesday 13 April 2021

#Cystic Fibrosis

# cystic-fibrosis - Thursday 8 April, 2021

Opinion: 'A new cystic fibrosis drug means I'm the healthiest I've been for 20 years'
# 65 Roses Day
# 65 Roses Day

Opinion: 'A new cystic fibrosis drug means I'm the healthiest I've been for 20 years'

Thu 7:00 AM 28,956 Views 11 Comments

Ahead of 65 Roses Day tomorrow, med student Bevin Murphy outlines the tough year she’s had as a person with CF, and how a new drug has changed everything.

# cystic-fibrosis - Monday 4 January, 2021

Department of Health can't give timeline for rollout of publicly-funded IVF
# Still Waiting
# Still Waiting

Department of Health can't give timeline for rollout of publicly-funded IVF

Jan 4th 2021, 12:05 AM 30,093 Views 27 Comments

Expert says linking IVF funding with the commencement of legislation is a ‘way of putting it off’.

# cystic-fibrosis - Tuesday 4 August, 2020

PPE grant now available for people with cystic fibrosis
# SUPPORTS
# SUPPORTS

PPE grant now available for people with cystic fibrosis

Aug 4th 2020, 2:01 PM 15,772 Views 8 Comments

The grant of €100 per applicant is available from Cystic Fibrosis Ireland.

# cystic-fibrosis - Tuesday 16 June, 2020

Cocooning through Covid-19 with CF has taken focus but I have never felt better
# Covid-19
# Covid-19

Cocooning through Covid-19 with CF has taken focus but I have never felt better

Jun 16th 2020, 7:00 AM 12,064 Views 4 Comments

Benat Broderick, who has cystic fibrosis, has been cocooning at home and says he’s grateful for the time to focus on his health and wellbeing.

# cystic-fibrosis - Saturday 30 May, 2020

Five weeks in lockdown in hospital is tough - and the food makes it worse
# Cystic Fibrosis
# Cystic Fibrosis

Five weeks in lockdown in hospital is tough - and the food makes it worse

May 30th 2020, 6:00 PM 54,532 Views 55 Comments

A patient with cystic fibrosis, for whom nutrition is key to health, shares her hospital food experience.

# cystic-fibrosis - Tuesday 21 April, 2020

Over €300,000 raised for CF Ireland through 65 Roses fundraising efforts
# Donations
# Donations

Over €300,000 raised for CF Ireland through 65 Roses fundraising efforts

Apr 21st 2020, 9:28 PM 10,632 Views 1 Comment

The 65 Roses fundraising campaign would usually see community-hosted events take place across the country.

# cystic-fibrosis - Friday 10 April, 2020

Living with cystic fibrosis in a pandemic is tough, but we have lived this for some time
# 65 Roses Day
# 65 Roses Day

Living with cystic fibrosis in a pandemic is tough, but we have lived this for some time

Apr 10th 2020, 10:00 PM 16,497 Views 1 Comment

Patricia Duffy-Barber, Chairperson of Cystic Fibrosis Ireland says people CF are nervous, but they’re doing their best to get through.

# cystic-fibrosis - Friday 3 April, 2020

Opinion: 'Covid-19 is the world's biggest fear. Welcome to my world.' Diary of a man with Cystic Fibrosis
# Cystic Fibrosis
# Cystic Fibrosis

Opinion: 'Covid-19 is the world's biggest fear. Welcome to my world.' Diary of a man with Cystic Fibrosis

Apr 3rd 2020, 7:00 AM 29,260 Views 5 Comments

Trevor O’Sullivan documents his challenges as a person with CF during the Covid-19 crisis.

# cystic-fibrosis - Saturday 14 March, 2020

Opinion: As a Cystic Fibrosis patient, the coronavirus is a major worry for me
# Covid-19
# Covid-19

Opinion: As a Cystic Fibrosis patient, the coronavirus is a major worry for me

Mar 14th 2020, 6:00 AM 32,713 Views 33 Comments

Benat Broderick writes about his concerns regarding Covid-19.

# cystic-fibrosis - Friday 17 January, 2020

Record number of patients were hit by dangerous hospital superbug last year
# Record Breaking
# Record Breaking

Record number of patients were hit by dangerous hospital superbug last year

Jan 17th 2020, 6:00 AM 10,182 Views 4 Comments

Over 660 new patients contracted the antibiotic-resistant bowel bug CPE from January to November – with 13 outbreaks currently across the country.

# cystic-fibrosis - Friday 13 December, 2019

'A most wonderful Christmas present': HSE to reimburse cost of new cystic fibrosis treatment
# Breakthrough
# Breakthrough

'A most wonderful Christmas present': HSE to reimburse cost of new cystic fibrosis treatment

Dec 13th 2019, 9:12 PM 11,115 Views 12 Comments

About 1,200 children and adults have Cystic Fibrosis in Ireland.

# cystic-fibrosis - Tuesday 3 December, 2019

New approach to treating cystic fibrosis could reduce the need for lung transplants, RCSI study finds
# Cystic Fibrosis
# Cystic Fibrosis

New approach to treating cystic fibrosis could reduce the need for lung transplants, RCSI study finds

Dec 3rd 2019, 6:10 AM 9,255 Views 5 Comments

Cystic fibrosis is a genetic disease that affects around 1,300 children and adults in Ireland.

# cystic-fibrosis - Saturday 6 July, 2019

Irish couple facing deportation in Australia because son has cystic fibrosis granted residency
# Down Under
# Down Under

Irish couple facing deportation in Australia because son has cystic fibrosis granted residency

Jul 6th 2019, 10:19 AM 33,653 Views 42 Comments

The couple appealed the decision to refuse them residency which prompted intervention from a government minister.

# cystic-fibrosis - Tuesday 7 May, 2019

Irish couple facing deportation from Australia because son has cystic fibrosis lose appeal
# Victoria
# Victoria

Irish couple facing deportation from Australia because son has cystic fibrosis lose appeal

May 7th 2019, 3:35 PM 57,418 Views 0 Comments

The couple are holding out hope that Australia’s Immigration Minister will intervene.

# cystic-fibrosis - Monday 29 April, 2019

We need to change the disabled parking logo - so people stop telling me that I'm not disabled when I am
# Opinion
# Opinion

We need to change the disabled parking logo - so people stop telling me that I'm not disabled when I am

Apr 29th 2019, 7:00 AM 53,160 Views 129 Comments

‘I find these interventions by members of the public quite insulting and extremely embarrassing,’ writes cystic fibrosis advocate, Benat Broderick, 15.

# cystic-fibrosis - Sunday 31 March, 2019

'Thinking of my donor made me really determined to achieve': How a double lung transplant changed this DCU lecturer's life
# Second Chance
# Second Chance

'Thinking of my donor made me really determined to achieve': How a double lung transplant changed this DCU lecturer's life

Mar 31st 2019, 8:00 PM 10,747 Views 2 Comments

Greg Foley had to get a double lung transplant after complications from his Cystic Fibrosis.

# cystic-fibrosis - Monday 28 January, 2019

Opinion: At 12 I started taking Orkambi as a trial drug and it transformed my life
# Opinion
# Opinion

Opinion: At 12 I started taking Orkambi as a trial drug and it transformed my life

Jan 28th 2019, 7:00 AM 22,188 Views 7 Comments

It was scary starting a drug trial for my cystic fibrosis. We didn’t know how I would react but thankfully my breathing and energy levels improved, writes Benat Broderick (15).

# cystic-fibrosis - Sunday 6 January, 2019

'I was studying to be a fitness coach when I needed a double lung transplant'
# Cystic Fibrosis
# Cystic Fibrosis

'I was studying to be a fitness coach when I needed a double lung transplant'

Jan 6th 2019, 5:28 PM 14,041 Views 2 Comments

Luke Doherty was added to the transplant waiting list when one of his lungs collapsed.

# cystic-fibrosis - Monday 3 December, 2018

'If I didn't take part in a clinical trial, I would have died'
# Better Care
# Better Care

'If I didn't take part in a clinical trial, I would have died'

Dec 3rd 2018, 6:30 AM 19,570 Views 13 Comments

Patients in Ireland are being encouraged to ask their doctors about clinical trials.

# cystic-fibrosis - Tuesday 18 September, 2018

Over 2,000 people sign up for organ donor cards in light of Orla Tinsley documentary
# Warrior
# Warrior

Over 2,000 people sign up for organ donor cards in light of Orla Tinsley documentary

Updated Sep 18th 2018, 10:10 PM 48,468 Views 34 Comments

Tinsley was on the lung transplant waiting list in the US for nine months.

# cystic-fibrosis - Saturday 14 April, 2018

'Nothing short of a miracle': Irish CF campaigner on recovery after double lung transplant
# Orla Tinsley
# Orla Tinsley

'Nothing short of a miracle': Irish CF campaigner on recovery after double lung transplant

Apr 14th 2018, 1:16 PM 18,127 Views 14 Comments

Orla Tinsley told RTÉ’s Six One News that she feels like a “new woman”.

# cystic-fibrosis - Friday 13 April, 2018

'She was just so ill, it was horrible to see my child like that'
# 65 Roses Day
# 65 Roses Day

'She was just so ill, it was horrible to see my child like that'

Apr 13th 2018, 6:15 AM 17,293 Views 4 Comments

Darcy Grainger is one of about 1,300 people in Ireland who have cystic fibrosis.

# cystic-fibrosis - Sunday 25 February, 2018

'I spend three hours a day on a nebuliser, but exercise helps my mental health'
# Cystic Fibrosis
# Cystic Fibrosis

'I spend three hours a day on a nebuliser, but exercise helps my mental health'

Feb 25th 2018, 7:30 PM 21,601 Views 16 Comments

Ireland has more cases of cystic fibrosis per head of population than any other country.

# cystic-fibrosis - Sunday 11 February, 2018

'We're terrified': Parents of sick children to hold vigil outside Crumlin hospital over trolley crisis
# Waiting Lists
# Waiting Lists

'We're terrified': Parents of sick children to hold vigil outside Crumlin hospital over trolley crisis

Feb 11th 2018, 12:00 PM 14,207 Views 24 Comments

One mother spoke to TheJournal.ie about the battle her child with Cystic Fibrosis has faced.

# cystic-fibrosis - Thursday 11 January, 2018

'We've come so far': Orkambi campaigners hail next step as children can now get 'life-changing' drug
# Cystic Fibrosis
# Cystic Fibrosis

'We've come so far': Orkambi campaigners hail next step as children can now get 'life-changing' drug

Jan 11th 2018, 6:10 AM 7,848 Views 9 Comments

Children between the ages of six and 11 will now be able to access the drug in Ireland after yesterday’s announcement.

# cystic-fibrosis - Tuesday 26 December, 2017

'I have shiny new lungs' -Irish Cystic Fibrosis activist gets double lung transplant
# Orla Tinsley
# Orla Tinsley

'I have shiny new lungs' -Irish Cystic Fibrosis activist gets double lung transplant

Dec 26th 2017, 5:02 PM 23,017 Views 24 Comments

The journalist and Cystic Fibrosis activist has long campaigned for more awareness about the condition.

# cystic-fibrosis - Saturday 23 December, 2017

Christmas without loved ones: 'Try to keep it simple. The first year is very, very difficult'
# Anam Cara
# Anam Cara

Christmas without loved ones: 'Try to keep it simple. The first year is very, very difficult'

Dec 23rd 2017, 9:45 AM 36,413 Views 19 Comments

Christmas can be a tough time for those who have lost a loved one.

# cystic-fibrosis - Thursday 21 December, 2017

Irish Cystic Fibrosis activist Orla Tinsley recovering in hospital after double lung transplant
# Donor Card
# Donor Card

Irish Cystic Fibrosis activist Orla Tinsley recovering in hospital after double lung transplant

Dec 21st 2017, 4:25 PM 24,241 Views 23 Comments

Tinsley spent the last number of days on life support in a New York hospital.

# cystic-fibrosis - Wednesday 20 December, 2017

Seriously ill Irish Cystic Fibrosis activist makes donor card appeal from intensive care
# Orla Tinsley
# Orla Tinsley

Seriously ill Irish Cystic Fibrosis activist makes donor card appeal from intensive care

Dec 20th 2017, 4:05 PM 23,250 Views 21 Comments

Orla Tinsley has been instrumental in raising awareness of gaps in CF services over the years.

# cystic-fibrosis - Saturday 26 August, 2017

'In danger of snatching defeat from the jaws of victory': How tension built ahead of Orkambi deal
# Cystic Fibrosis
# Cystic Fibrosis

'In danger of snatching defeat from the jaws of victory': How tension built ahead of Orkambi deal

Aug 26th 2017, 12:05 AM 12,459 Views 11 Comments

HSE and Vertex employees were working long hours behind the scenes to secure the historic agreement.

# cystic-fibrosis - Monday 24 July, 2017

Campaign to raise money for Orla Tinsley's lung transplant care hits target
# Cystic Fibrosis
# Cystic Fibrosis

Campaign to raise money for Orla Tinsley's lung transplant care hits target

Jul 24th 2017, 4:16 PM 19,692 Views 13 Comments

A fundraiser has been set up to help Irish journalist Orla Tinsley raise money for a lung transplant aftercare.

# cystic-fibrosis - Sunday 7 May, 2017

'Undue fear and confusion': Read the emails Vertex sent to Department of Health about Orkambi
# Cystic Fibrosis
# Cystic Fibrosis

'Undue fear and confusion': Read the emails Vertex sent to Department of Health about Orkambi

May 7th 2017, 6:45 AM 11,868 Views 5 Comments

A deal on the cystic fibrosis drug was finally reached last month.

# cystic-fibrosis - Thursday 13 April, 2017

'No parent wants to see their child go before them': Living day-to-day with cystic fibrosis
# 65 Roses Day
# 65 Roses Day

'No parent wants to see their child go before them': Living day-to-day with cystic fibrosis

Apr 13th 2017, 6:07 AM 7,748 Views 5 Comments

Cystic fibrosis can be a life-changing condition for entire families.

# cystic-fibrosis - Wednesday 12 April, 2017

'We are so, so happy that it's finally here': Cystic fibrosis patients celebrate deal on Orkambi
# End Of A Long Road
# End Of A Long Road

'We are so, so happy that it's finally here': Cystic fibrosis patients celebrate deal on Orkambi

Apr 12th 2017, 6:00 AM 6,588 Views 9 Comments

Orkambi – as well as the drug Kalydeco – will now be available for CF sufferers from 1 May.

# cystic-fibrosis - Tuesday 11 April, 2017

'Life changing' cystic fibrosis drug Orkambi will be available from next month
# Deal Reached
# Deal Reached

'Life changing' cystic fibrosis drug Orkambi will be available from next month

Apr 11th 2017, 6:08 PM 29,709 Views 35 Comments

Simon Harris made the announcement today in the Dáil.

# cystic-fibrosis - Monday 3 April, 2017

'After the transplant, I looked in the mirror and my eyes weren’t yellow anymore, they were white'
# Organ Donation
# Organ Donation

'After the transplant, I looked in the mirror and my eyes weren’t yellow anymore, they were white'

Apr 3rd 2017, 6:30 AM 19,922 Views 10 Comments

Shauna Morrissey has cystic fibrosis and is campaigning for an opt-out organ donation system.

# cystic-fibrosis - Sunday 2 April, 2017

'Helen didn’t have a peaceful death, she wanted to live so much'
# Organ Donation
# Organ Donation

'Helen didn’t have a peaceful death, she wanted to live so much'

Apr 2nd 2017, 7:00 PM 36,630 Views 14 Comments

Helen Taylor died while waiting for a double lung transplant in 2014.

# cystic-fibrosis - Monday 6 March, 2017

Deal on 'miracle' cystic fibrosis drug expected in a matter of weeks
# Orkambi
# Orkambi

Deal on 'miracle' cystic fibrosis drug expected in a matter of weeks

Mar 6th 2017, 1:24 PM 9,825 Views 15 Comments

Health Minister Simon Harris said that he wants a good deal for the taxpayer and, most importantly, for patients.

# cystic-fibrosis - Tuesday 21 February, 2017

Taoiseach told 'several children have died' waiting for Orkambi drug decision
# Cystic Fibrosis
# Cystic Fibrosis

Taoiseach told 'several children have died' waiting for Orkambi drug decision

Feb 21st 2017, 8:06 PM 18,031 Views 53 Comments

Orkambi is estimated to cost €159,000 per patient.

# cystic-fibrosis - Sunday 18 December, 2016

Your crash course in... Ireland's battle with Big Pharma for a 'miracle' cystic fibrosis drug
# Health
# Health

Your crash course in... Ireland's battle with Big Pharma for a 'miracle' cystic fibrosis drug

Dec 18th 2016, 7:00 AM 8,344 Views 33 Comments

The government is making a last-ditch attempt to settle a better price for Orkambi.

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