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#Cystic Fibrosis

# cystic-fibrosis - Thursday 13 December, 2012

Oireachtas agenda: Social Welfare Bill, insurance premiums and CF unit

TDs finally get to vote on controversial measures like cuts to respite care grant this morning.

# cystic-fibrosis - Wednesday 12 December, 2012

Committee seek clarification on St Vincent's Cystic Fibrosis unit

The committee chair Jerry Buttimer said that they will be keen to establish if the facility meets the necessary requirements.

# cystic-fibrosis - Monday 3 December, 2012

Public warned over winter vomiting bug in St Vincent’s Hospital

Visiting restrictions are in place at the hospital in response to a “particularly virulent” form of the winter vomiting bug.

Read Me: I have CF but I'm afraid to get sick

As inadequate accommodation for cystic fibrosis patients again hits headlines, one young person with CF tells an emotional tale of hospital life.

# cystic-fibrosis - Tuesday 27 November, 2012

Five cystic fibrosis patients waiting for room at St Vincent's

The Cystic Fibrosis Association of Ireland has requested a review of the management of CF beds at the hospital.

# cystic-fibrosis - Friday 9 November, 2012

Cystic Fibrosis Association welcomes granting of licences for embryo testing

Clinics will now offer tests to screen for diseases like cystic fibrosis as well as abnormalities that can cause miscarriages and IVF failure.

# cystic-fibrosis - Sunday 23 September, 2012

Orla Tinsley: Honesty about death and purpose in life

The Seamus Heaney poem ‘Mid-term Break’ always resonated with cystic fibrosis rights campaigner Orla Tinsley – and made her realise that life, though fragile, can be “calculated and powerful”.

# cystic-fibrosis - Saturday 1 September, 2012

Pressure on Health Minister to approve and supply new cystic fibrosis drug

The Minister and the HSE have been called upon to approve and supply a revolutionary new treatment for certain sufferers of cystic fibrosis.

# cystic-fibrosis - Monday 30 July, 2012

Cystic fibrosis patients begin move to new €22m unit

The new specialised facility at Dublin’s St Vincent’s Hospital comes after an eight-year campaign to provide those suffering with the condition with better care.

# cystic-fibrosis - Saturday 28 July, 2012

New drug for cystic fibrosis approved by European regulators

Regulators in Ireland must now approve the drug ahead of negotiations between the drug’s manufacturer and the HSE regarding pricing.

# cystic-fibrosis - Saturday 14 July, 2012

Emergency services forced to abandon 65-mile kayak for Cystic Fibrosis

Three men have raised over €11,ooo to go towards the construction of a dedicated Cystic Fibrosis Unit at Waterford Regional Hopsital but their planned journey was affected by the weather this morning.

# cystic-fibrosis - Thursday 24 May, 2012

Why do females fare worse than males with cystic fibrosis?

A new study from the Royal College of Surgeons in Ireland shows that the female hormone oestrogen has a role to play in this.

# cystic-fibrosis - Monday 9 April, 2012

Column: There were no proper CF facilities for my son in Cork - so we built some

Facilities for people with cystic fibrosis weren’t great when my son was diagnosed, writes Joe Browne. Now Cork has one of the most advanced clinics in the world. Here’s how we did it.

# cystic-fibrosis - Sunday 1 January, 2012

Column: My 'bucket list' for the New Year

Years of serious childhood illness and two organ transplants stifled Trevor O’Sullivan’s personal wishlist for years. He’s still ill – but now he wants to really go for it, Rocky-style.

# cystic-fibrosis - Wednesday 23 November, 2011

CF centre in Cork sees almost 100 per cent more patients than expected

The centre in Cork University Hospital had planned to deal with 75 patients with cystic fibrosis a year – but there’s almost double that attending right now.

# cystic-fibrosis - Tuesday 8 November, 2011

New Cystic Fibrosis treatment launched

The ‘Podhaler’ is a wireless inhaler that reduces the time needed to receive antibiotic treatment from almost an hour a day to just five or six minutes.

# cystic-fibrosis - Tuesday 4 October, 2011

Cystic Fibrosis ward to open at Crumlin hospital today

President Mary McAleese will be at Our Lady’s Children’s Hospital today to open a state-of-the-art, four-bed ward for patients with Cystic Fibrosis.

# cystic-fibrosis - Monday 20 June, 2011

Major breakthrough in cystic fibrosis treatment

Ireland has the largest proportion of cystic fibrosis sufferers in the world and the news has been largely welcomed.

# cystic-fibrosis - Friday 17 June, 2011

A new breath of life for Dublin woman after double-lung transplant

20 year old Becky Jones, who has cystic fibrosis, has made history by undergoing a transplant after developing a fungus in her airways due to an allergy.

# cystic-fibrosis - Monday 18 April, 2011

The 9 at 9: Monday

Nine things you need to know by 9am: Enda’s “charm offensive” continues, MORE bad news for Irish banks, and a new €430m ski resort in… Louth?

# cystic-fibrosis - Wednesday 13 April, 2011

Take 5: Wednesday

5 minutes, 5 stories, 5 o’clock.

Cystic fibrosis group “concerned” that new unit to have 40 per cent fewer beds than hoped

Health Minister James Reilly has stated that St Vincent’s unit will only have 20 inpatient beds – when 34 was recommended by consultants.

# cystic-fibrosis - Wednesday 9 February, 2011

Take 5: Wednesday

Today, all parties switched their focus from issues that have dominated the election debate until now; the family of the late cystic fibrosis campaigner Anita Slowey pay tribute to her; and the IMF have (some) good news regarding Ireland’s progress.

Family pays tribute to late cystic fibrosis campaigner

Anita Slowey, 24, had been a regular feature on the national airwaves as she fought to have a specialised CF unit built.

# cystic-fibrosis - Monday 24 January, 2011

Irish hospitals to introduce routine CF tests for newborns

The HSE has announced that it plans to introduce a newborn screening programme for cystic fibrosis.

The 9 at 9: Monday

Nine things you need to know by 9am: Deadlines loom for would-be Fianna Fail leaders, for a final date for General Election 2011 – and for the person who wants to be the one to flick the ‘crush’ switch on Sean FitzPatrick’s BMW.

# cystic-fibrosis - Monday 1 November, 2010

Blood on equipment and urine on floors: life as a CF patient

The mother of a late CF patient releases an independent report into her daughter’s death at Waterford Regional.

# cystic-fibrosis - Thursday 14 October, 2010

CF unit contract to be signed this week

St Vincent’s Hopsital says it will finalise the agreement to build its special unit in the next 24 hours.

# cystic-fibrosis - Wednesday 13 October, 2010

New CF unit could be built by April 2012

Cystic Fibrosis sufferers could see a specialised unit open in 18 months.