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# SPINAL MUSCULAR ATROPHY

Last year
2023
Newborn babies to be tested for Spinal Muscular Atrophy from next year
All time
'Timing is key': Parents call for inclusion of rare genetic disease in newborn heel prick test
'I've can't lift my arms, brush my hair, or even go to the toilet alone': Children still waiting on Spinraza drug, Dáil told
'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval
'If she gets another chest infection she probably won't make it, that’s the reality'