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#SPINAL MUSCULAR ATROPHY
# spinal-muscular-atrophy - Wednesday 8 July, 2020
'I've can't lift my arms, brush my hair, or even go to the toilet alone': Children still waiting on Spinraza drug, Dáil told
The drug is used to treat SMA which can develop in babies and toddlers and can significantly reduce life expectancy.
# spinal-muscular-atrophy - Wednesday 15 May, 2019
'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval
Spinal muscular atrophy weakens muscles and causes problems with movement, breathing and swallowing.
# spinal-muscular-atrophy - Saturday 7 January, 2017
'If she gets another chest infection she probably won't make it, that’s the reality'
Nellie and Lara are the only two children in Ireland with Spinal Muscular Atrophy Type 1 – an extremely rare genetic condition.
Your say
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Poll: Would you visit an outdoor city centre swimming pool?
THE SPOTLIGHT IS once again on Dublin City Council after plans were revealed for a €15 million sea pool in Dublin city centre.
With Irish weather as unpredictable as ever, as evidenced by the lashing rain in the last week, are people really interested in an outdoor swimming pool in the city centre?
So this morning, we’d like to know would you visit an outdoor swimming pool if you had one in your vicinity?
Poll Results:
No (6430)
Yes (2766)
No opinion (234)
Share your story: voices@thejournal.ie
Opinion: Ireland is in prime position to hold social networks to account - and we must
By Paul Tweed
Eoin Ó'Broin: Now is the time for the Government to borrow and invest in public housing
By Eoin Ó Broin
Professor Ruairí Brugha: We must close the pubs again - our health workers deserve better
By Ruairí Brugha
Have you hit lockdown fatigue? Two wellness practitioners have some advice for you
By Margaret Young & Laura Linehan
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