Advertisement

We need your help now

Support from readers like you keeps The Journal open.

You are visiting us because we have something you value. Independent, unbiased news that tells the truth. Advertising revenue goes some way to support our mission, but this year it has not been enough.

If you've seen value in our reporting, please contribute what you can, so we can continue to produce accurate and meaningful journalism. For everyone who needs it.

€2 a Month €5 a Month One-off amount

# SPINAL MUSCULAR ATROPHY

Last year
2023
Newborn babies to be tested for Spinal Muscular Atrophy from next year
26 Nov 2023
15.1k
2
All time
'Timing is key': Parents call for inclusion of rare genetic disease in newborn heel prick test
28 Jun 2022
12.2k
2
'I've can't lift my arms, brush my hair, or even go to the toilet alone': Children still waiting on Spinraza drug, Dáil told
8 Jul 2020
11.5k
1
'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval
15 May 2019
6.3k
4
'If she gets another chest infection she probably won't make it, that’s the reality'
7 Jan 2017
32.0k
16