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Wednesday 22 March 2023 Dublin: 10°C

# Selling our genes

All time
# Selling our genes
Government investment in DNA-collecting company Genuity Science loses value
The Ireland Strategic Investment Fund had invested €66m in the private genetics company acquired in a deal announced yesterday.
# Selling our genes
Selling Our Genes: Government inaction allowing private sector to take control of our DNA
Hospitals and universities across Ireland are collaborating with Genuity Science due to, experts say, lack of a public project or strategy.
# Selling our genes
Selling Our Genes: UCD agreement with for-profit DNA collection company 'restrictive'
Expert familiar with such agreements cited issues with data access, exclusivity and intellectual property.
# noteworthy.ie
Selling Our Genes: Government needs to keep ‘our national identity’ in public ownership
Ireland still has a chance to take control of genomics research – if it follows this advice.
# Selling our genes
Beaumont researchers change opt-out deadline for genomics study following calls by Health Minister
Concerns were raised in the Dáil because “public awareness of this significant proposal is very limited”.
# Consent Process
Concerns over timing of opt-out 'publicity campaign' for genomics research
Researchers are worried that affected patients and families will not see notices for commercially linked study.
Voices
Opinion: 'We have to act now before our genetic code falls into private hands to be used for profit'
Solicitor Simon McGarr also explains how Genomics Medicine Ireland did not meet the informed consent requirements for a Galway study.
Voices
Opinion: Why has the State invested €70m in a private company to look at our genetic data?
Dr Ciara Staunton says it is “unfathomable” that the government has funded the collection of 400,000 Irish genomes, shutting them off from most researchers.