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#Epilepsy

# epilepsy - This year 2022

Timeframe still not decided for inquiry into epilepsy drug that can cause birth defects
# Valproate
# Valproate

Timeframe still not decided for inquiry into epilepsy drug that can cause birth defects

Apr 23rd 2022, 10:00 AM 11,688 Views 2 Comments

The medicine was prescribed without warnings to patients for years after regulators knew about its risks.

# epilepsy - Last year 2021

Families still waiting for inquiry into use of drug that causes birth defects
# Risk To Baby
# Risk To Baby

Families still waiting for inquiry into use of drug that causes birth defects

Dec 27th 2021, 12:05 AM 40,638 Views 24 Comments
  • Health Minister Stephen Donnelly committed to an inquiry a year ago, reports Noteworthy's Maria Delaney
  • The 'vast majority' of the recommended services for affected children have not been put in place
  • Four nurses - a key measure to 'reduce harm in the future' - are still not appointed
Research finds pet dogs can predict owners' epileptic seizures
# Man's Best Friend
# Man's Best Friend

Research finds pet dogs can predict owners' epileptic seizures

Updated Aug 31st 2021, 10:01 AM 11,887 Views 15 Comments

19 dogs demonstrated more behavioural changes when confronted by seizure-associated odours, compared with their response to control odours.

Valproate scandal: Parents feel failed by State over drug that harmed their children
# Risk To Baby
# Risk To Baby

Valproate scandal: Parents feel failed by State over drug that harmed their children

Apr 16th 2021, 12:01 AM 52,188 Views 9 Comments

Noteworthy finds that pleas for help from women impacted by valproate (Epilim) continue to be dismissed.

# epilepsy - All time

Women 'dismissed' by doctors over mesh and epilepsy drug fears 'deserve apology'
# Ignored
# Ignored

Women 'dismissed' by doctors over mesh and epilepsy drug fears 'deserve apology'

Jul 8th 2020, 12:02 AM 21,832 Views 9 Comments

Irish patient groups call for a State apology and similar inquiries here following the publication of a UK report.

This woman was paralysed on one side - two years later she walked on the Great Wall of China
# Honour Your Heroes
# Honour Your Heroes

This woman was paralysed on one side - two years later she walked on the Great Wall of China

Aug 20th 2019, 5:42 PM 10,552 Views 2 Comments

Sacha Dekker took part in Beaumont Hospital Foundation’s annual Honour Your Heroes event today.

Irish researchers make discovery which may lead to epilepsy 'warning system'
# Epilepsy
# Epilepsy

Irish researchers make discovery which may lead to epilepsy 'warning system'

Jun 10th 2019, 5:48 PM 13,266 Views 2 Comments

The discovery was made by researchers at the Royal College of Surgeons in Ireland.

Simon Harris says Ireland may own its own medicinal cannabis supply in the future
# Cannabis Eire
# Cannabis Eire

Simon Harris says Ireland may own its own medicinal cannabis supply in the future

May 7th 2019, 6:15 AM 18,378 Views 45 Comments

The legislation to underpin the medicinal cannabis scheme is due to be signed off on in the coming weeks.

Man who lost teeth from epileptic seizures fined for possessing cannabis used to treat symptoms
# Fined
# Fined

Man who lost teeth from epileptic seizures fined for possessing cannabis used to treat symptoms

Nov 20th 2018, 5:18 PM 23,348 Views 55 Comments

John Mountaine received a fine of €100.

Medical cannabis products can now be prescribed in Northern Ireland
# Seizures
# Seizures

Medical cannabis products can now be prescribed in Northern Ireland

Nov 1st 2018, 8:24 AM 18,623 Views 23 Comments

The move has been welcomed by some, while others say the new rules are still too restrictive.

Living with grief: 'Being here without her has been - and still is - hard work’
# Epilepsy
# Epilepsy

Living with grief: 'Being here without her has been - and still is - hard work’

Oct 23rd 2018, 7:00 AM 36,130 Views 9 Comments

Each one of us will experience death or personal loss at some point so for me it seems logical to share my path to try and offer reassurance and hope to others, writes Mark Earley 18 months after the death of his wife Liane.

Man loses bid to leave nursing home, is made ward of court
# Epilepsy
# Epilepsy

Man loses bid to leave nursing home, is made ward of court

Updated Aug 7th 2018, 6:09 PM 24,085 Views 0 Comments

An advocacy group representing the man said he has lost “his rights as a citizen”.

Epilepsy: 'My emotions are heightened and I'm overwhelmed by difficult or upsetting situations'
# National Epilepsy Week
# National Epilepsy Week

Epilepsy: 'My emotions are heightened and I'm overwhelmed by difficult or upsetting situations'

May 20th 2018, 7:30 PM 44,640 Views 25 Comments

Living with epilepsy is challenging, it is a challenge for those who have the condition but it’s also a challenge for their friends and family, writes Eva-Jayne Gaffney.

'Until you've experienced epilepsy yourself, you don't understand what it's like to have no control'
# New Beginnings
From The42
# New Beginnings

'Until you've experienced epilepsy yourself, you don't understand what it's like to have no control'

Feb 18th 2018, 8:00 PM 22,644 Views 4 Comments

Richael Timothy was forced to retire from Gaelic football at 21 with epilepsy, but has found a new lease of life in para-cycling.

Pharmaceutical cannabis could reduce sudden falls for people with treatment-resistant epilepsy
# Alternative Treatment
# Alternative Treatment

Pharmaceutical cannabis could reduce sudden falls for people with treatment-resistant epilepsy

Jan 25th 2018, 6:10 AM 9,524 Views 30 Comments

People with Lennox-Gastaut syndrome, a severe and lifelong form of childhood-onset epilepsy, were found to have benefitted from the treatment.

How do you tell people that you have epilepsy? Irish app aims to help
# Trinity
# Trinity

How do you tell people that you have epilepsy? Irish app aims to help

Dec 10th 2017, 6:33 PM 9,646 Views 18 Comments

Many people with the condition say they find it difficult to decide who to tell, and how to go about it.

Epilepsy drug which has left 400 Irish children with disabilities to come under EU review today
# Valproate
# Valproate

Epilepsy drug which has left 400 Irish children with disabilities to come under EU review today

Sep 26th 2017, 6:25 AM 20,710 Views 8 Comments

An Irish woman whose three children have disabilities will give evidence at a public hearing today.

Epilepsy medicine linked to 'severe malformations' in children in France
# Valproate
# Valproate

Epilepsy medicine linked to 'severe malformations' in children in France

Apr 20th 2017, 10:14 PM 12,854 Views 14 Comments

The types of birth defects attributed to the drug included spina bifida as well as defects of the heart and genital organs.

'I'm done for, because I can't get that for Ava': Vera Twomey makes heartfelt plea in radio interview
# Medicinal Cannabis
# Medicinal Cannabis

'I'm done for, because I can't get that for Ava': Vera Twomey makes heartfelt plea in radio interview

Feb 23rd 2017, 6:18 PM 26,303 Views 71 Comments

Vera Twomey met with Health Minister Simon Harris today.

'My epilepsy diagnosis gave me impetus to achieve as much as I can to prove all the naysayers wrong'
# EPILEPSY DAY
# EPILEPSY DAY

'My epilepsy diagnosis gave me impetus to achieve as much as I can to prove all the naysayers wrong'

Feb 11th 2017, 8:15 PM 838 Views 19 Comments

Monday is International Epilepsy Day. Ailbhe Benson (27) reveals her personal journey with the condition that affects over 37,000 people in Ireland.

'I've seen this work': Mother takes fight for medical cannabis to Leinster House
# Ava
# Ava

'I've seen this work': Mother takes fight for medical cannabis to Leinster House

Nov 24th 2016, 12:18 PM 13,932 Views 63 Comments

A parent of a severe epilepsy sufferer said cannabidiol helped to greatly reduce her seizures.

'I can't believe we're coming home. It's going to be the best Christmas ever'
# Cannabis Oil
# Cannabis Oil

'I can't believe we're coming home. It's going to be the best Christmas ever'

Nov 17th 2016, 4:59 PM 25,416 Views 22 Comments

Tristan Cahalane suffers from an extremely rare form of epilepsy and cannabis oil helps with his treatment.

Cork family fighting for cannabis-based medicine for daughter with rare form of epilepsy
# Dravet Syndrome
# Dravet Syndrome

Cork family fighting for cannabis-based medicine for daughter with rare form of epilepsy

Sep 24th 2016, 7:20 AM 25,901 Views 51 Comments

TDs will debate medicinal cannabis use in the near future.

'An utter warrior': Cork family appeals for little girl to be allowed use cannabis-based medicine
# Seizures
# Seizures

'An utter warrior': Cork family appeals for little girl to be allowed use cannabis-based medicine

Apr 29th 2016, 6:30 AM 22,491 Views 124 Comments

Some 11 types of pharmaceutical medication have failed to improve Ava Barry’s condition.

Complaint upheld against gym over 'epileptic fit' ad
# Airside Bootcamp
# Airside Bootcamp

Complaint upheld against gym over 'epileptic fit' ad

Apr 21st 2016, 6:10 AM 27,642 Views 18 Comments

Epilepsy Ireland said the Facebook ad had caused upset and hurt to people with epilepsy and their families.

'I’m comfortable with my epilepsy. What is difficult are the assumptions around being a non-drinker'
# Opinion
# Opinion

'I’m comfortable with my epilepsy. What is difficult are the assumptions around being a non-drinker'

Feb 14th 2016, 6:30 PM 1,145 Views 27 Comments

I enjoyed partying and drinking with friends but then I was diagnosed with epilepsy.

Young man killed by his own dog as he suffered an epileptic seizure
# England
# England

Young man killed by his own dog as he suffered an epileptic seizure

Jan 2nd 2016, 4:09 PM 43,616 Views 56 Comments

Trigger was then taken to a local vet to be put down.

'There is always the chance of not waking up after a seizure'
# Epilepsy
# Epilepsy

'There is always the chance of not waking up after a seizure'

Dec 17th 2015, 6:02 AM 23,034 Views 26 Comments

Irish-led research could lead to a breakthrough in treatment for people with epilepsy.

Epilepsy unit at Beaumont Hospital closed because of staff shortages
# Nurses
# Nurses

Epilepsy unit at Beaumont Hospital closed because of staff shortages

Aug 28th 2015, 7:30 AM 13,147 Views 29 Comments

Vacant positions have been filled but the unit will not reopen until 21 September.

Indian groom has fit at wedding, so bride marries someone else
# I Thee Dread
From The Daily Edge
# I Thee Dread

Indian groom has fit at wedding, so bride marries someone else

Feb 18th 2015, 7:30 PM 5,496 Views 3 Comments

She says, “I do.” He says, “You’ll do.”

"I was diagnosed when I was 14 and it was very scary. There is still no reason for it"
# Epilepsy
# Epilepsy

"I was diagnosed when I was 14 and it was very scary. There is still no reason for it"

Feb 3rd 2015, 10:25 AM 14,040 Views 15 Comments

A former Irish cricketer talks about her diagnosis of epilepsy.

These men will swim in the Irish sea for 24 hours to raise money for epilepsy
# Gruelling
# Gruelling

These men will swim in the Irish sea for 24 hours to raise money for epilepsy

Sep 13th 2014, 12:43 PM 9,713 Views 14 Comments

The swim is in memory of a family friend with epilepsy who died in 2010.

Scientists are figuring out a way to make our brains work better
# Insane In The Brain
# Insane In The Brain

Scientists are figuring out a way to make our brains work better

Aug 7th 2014, 12:05 PM 6,869 Views 15 Comments

The results could be good news for those suffering from nervous system disorders.

Epilepsy drug for children recalled over contamination risk
# Seizures
# Seizures

Epilepsy drug for children recalled over contamination risk

Jul 30th 2014, 1:47 PM 8,301 Views 14 Comments

The Health Products Regulatory Authority said this is just a precautionary measure and patients do not have to return packs to their pharmacy.

One in three would still put something in mouth of person having seizure
# Epilepsy
# Epilepsy

One in three would still put something in mouth of person having seizure

Feb 10th 2014, 4:23 PM 20,731 Views 18 Comments

A new campaign to raise awareness about epilepsy is supported by Ireland’s rugby coach Joe Schmidt, whose son has the condition.

Here's What Happened Today: Sunday
# News Fix
# News Fix

Here's What Happened Today: Sunday

Jul 28th 2013, 8:00 PM 12,253 Views 2 Comments

Everybody’s talking about garda behaviour at the 2010 student protest, injuries at Croagh Patrick and continued violence in Egypt.

Concern over lack of warning about flashing lights at events
# Health
# Health

Concern over lack of warning about flashing lights at events

Jul 28th 2013, 8:45 AM 19,267 Views 54 Comments

People with epilepsy are asking to be informed in advance about the type of lighting at shows – so they don’t have to leave due to seizure risk.

People with epilepsy 11 times more likely to die prematurely
# Research
# Research

People with epilepsy 11 times more likely to die prematurely

Jul 22nd 2013, 2:45 PM 4,919 Views 19 Comments

The risk is heightened for individuals who suffer from depression or other psychiatric conditions.

Epilepsy Ireland 'extremely frustrated' about drug substitution
# Anti-epileptic Drugs
# Anti-epileptic Drugs

Epilepsy Ireland 'extremely frustrated' about drug substitution

May 9th 2013, 7:22 PM 9,273 Views 37 Comments

The group believe generic versions of anti-epileptic drugs could lead to “breakthrough seizures”.

HSE U-turn on funding for epilepsy sufferer 'insulting'
# Gráinne O'Connor
# Gráinne O'Connor

HSE U-turn on funding for epilepsy sufferer 'insulting'

Feb 25th 2013, 12:31 PM 4,961 Views 10 Comments

Gráinne O’Connor, 27, had originally been declined funding by the HSE, even though her required treatment is not available in Ireland.

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