'Obviously life means nothing to these people': Patient dies waiting for deal on vital medication
The HSE has been negotiating with pharmaceutical company CSL Behring to make Respreeza available to Alpha One patients.
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The HSE has been negotiating with pharmaceutical company CSL Behring to make Respreeza available to Alpha One patients.
21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.
21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.
People are set to lose access to Respreeza at the end of the month.
A genetic test pinpointed a destructive lung condition in Michael McNamee’s family – now experimental medicine is helping him to beat the odds.
One in 25 people is a carrier for Alpha-1 deficiency, but it remains somewhat of a hidden disease.