Advertisement

Readers like you keep news free for everyone.

More than 5,000 readers have already pitched in to keep free access to The Journal.

For the price of one cup of coffee each week you can help keep paywalls away.

Support us today
Not now
Sunday 28 May 2023 Dublin: 15°C

# alpha-1

All time
# respreeza
'Obviously life means nothing to these people': Patient dies waiting for deal on vital medication
The HSE has been negotiating with pharmaceutical company CSL Behring to make Respreeza available to Alpha One patients.
# alpha-1
'Inappropriate and unethical': Varadkar backs life-saving lung disease drug for some users after HSE fails to fund it
21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.
# alpha-1
'We wouldn't be here without it': HSE will not fund life-saving lung disease drug
21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.
# alpha-1
'I'm living proof it works': Patients with severe lung condition call for access to 'life-changing' drug
People are set to lose access to Respreeza at the end of the month.
# Experimental
Science Changes Lives: Medical trial is saving me from illness that took my two sisters
A genetic test pinpointed a destructive lung condition in Michael McNamee’s family – now experimental medicine is helping him to beat the odds.
# Genetics
Ever heard of Alpha-1 deficiency? Here's why you might want to get tested
One in 25 people is a carrier for Alpha-1 deficiency, but it remains somewhat of a hidden disease.