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Friday 3 February 2023 Dublin: 10°C

# alpha-1

All time
# respreeza
'Obviously life means nothing to these people': Patient dies waiting for deal on vital medication
The HSE has been negotiating with pharmaceutical company CSL Behring to make Respreeza available to Alpha One patients.
# alpha-1
'Inappropriate and unethical': Varadkar backs life-saving lung disease drug for some users after HSE fails to fund it
21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.
# alpha-1
'We wouldn't be here without it': HSE will not fund life-saving lung disease drug
21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.
# alpha-1
'I'm living proof it works': Patients with severe lung condition call for access to 'life-changing' drug
People are set to lose access to Respreeza at the end of the month.
# Experimental
Science Changes Lives: Medical trial is saving me from illness that took my two sisters
A genetic test pinpointed a destructive lung condition in Michael McNamee’s family – now experimental medicine is helping him to beat the odds.
# Genetics
Ever heard of Alpha-1 deficiency? Here's why you might want to get tested
One in 25 people is a carrier for Alpha-1 deficiency, but it remains somewhat of a hidden disease.