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Tuesday 21 March 2023 Dublin: 11°C

# pku

All time
# low protein diet
'When we tried to explain PKU to people in the past, they'd say we were mad, things are different now'
People with this rare genetic condition need to maintain strict low-protein diets.
# pku
'If I stay in Ireland, my daughter could be slipping through my fingers'
People with PKU, a rare genetic disorder, are fighting for access to medication.
# pku
'Nobody knows what it is': The rare genetic condition that means people must avoid protein
Despite being rare, Ireland has one of the highest rates of PKU in Europe.