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#Motor neurone disease

# motor-neurone-disease - Monday 2 September, 2019

'He was full of ideas for the future': Archbishop of Dublin pays tribute to Fr Tony Coote
# RIP
# RIP

'He was full of ideas for the future': Archbishop of Dublin pays tribute to Fr Tony Coote

Sep 2nd 2019, 7:55 AM 16,655 Views 5 Comments

Fr Tony Coote, who suffered from motor neurone disease, died last week.

# motor-neurone-disease - Thursday 29 August, 2019

Tributes paid following death of motor neurone disease campaigner Fr Tony Coote
# RIP
# RIP

Tributes paid following death of motor neurone disease campaigner Fr Tony Coote

Aug 29th 2019, 8:29 AM 31,604 Views 16 Comments

Fr Coote’s Walk While You Can campaign raised hundreds of thousands of euro for research.

# motor-neurone-disease - Monday 25 February, 2019

'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition
# Spinraza
# Spinraza

'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition

Updated Feb 25th 2019, 7:54 PM 23,228 Views 62 Comments

The HSE said the current price of Spinraza – more than €20 million over five years – is not cost-effective.

# motor-neurone-disease - Tuesday 8 January, 2019

Doddie Weir: Living with MND, the crusade for a cure and the global rugby family
# Interview
From The42
# Interview

Doddie Weir: Living with MND, the crusade for a cure and the global rugby family

Jan 8th 2019, 7:30 AM 6,077 Views 4 Comments

‘The truly amazing support from the rugby community gives me a reason to get up in the morning.’

# motor-neurone-disease - Wednesday 5 December, 2018

'Letterkenny to Ballydehob': Documentary follows one priest's battle with Motor Neurone Disease on his walk around Ireland
# WALKING THE WALK
# WALKING THE WALK

'Letterkenny to Ballydehob': Documentary follows one priest's battle with Motor Neurone Disease on his walk around Ireland

Dec 5th 2018, 6:15 AM 11,707 Views 7 Comments

Fr Tony Coote completed his journey in his own modified wheelchair.

# motor-neurone-disease - Monday 12 November, 2018

England captain dedicates 100th cap to seriously-ill footballer husband
# Family First
From The42
# Family First

England captain dedicates 100th cap to seriously-ill footballer husband

Nov 12th 2018, 9:30 PM 47,060 Views 5 Comments

‘This one’s for my family, my husband, who are there with you when there’s a lot of lows.’

# motor-neurone-disease - Monday 5 June, 2017

'I'm 59 and soon I won't be able to hold my grandson'
# Drink Tea For MND
# Drink Tea For MND

'I'm 59 and soon I won't be able to hold my grandson'

Jun 5th 2017, 7:15 AM 23,097 Views 6 Comments

Michael Clancy has Motor Neurone Disease.

# motor-neurone-disease - Monday 6 February, 2017

South African rugby legend Joost van der Westhuizen dies aged 45
# RIP
From The42
# RIP

South African rugby legend Joost van der Westhuizen dies aged 45

Feb 6th 2017, 12:42 PM 39,655 Views 30 Comments

The World Cup-winning Springbok scrum-half had been battling motor neurone disease since 2011.

# motor-neurone-disease - Saturday 15 October, 2016

'I regret not talking to my mother about her death, don't do the same thing'
# Death Charter
# Death Charter

'I regret not talking to my mother about her death, don't do the same thing'

Oct 15th 2016, 8:30 PM 33,488 Views 12 Comments

The Irish Hospice Foundation wants people to talk about death, dying and grief more openly.

# motor-neurone-disease - Saturday 13 February, 2016

‘l just hope that I can keep going as long as I can without being a big problem to people... a burden I suppose"
# Motor Neurone Disease
# Motor Neurone Disease

‘l just hope that I can keep going as long as I can without being a big problem to people... a burden I suppose"

Feb 13th 2016, 8:30 PM 22,477 Views 12 Comments

A new study shows that people with MND can feel like a burden towards those who care for them.

# motor-neurone-disease - Friday 27 November, 2015

Emotional scenes at Celtic Park last night as club hosted terminally ill ex-Rangers player
# Perspective
From The42
# Perspective

Emotional scenes at Celtic Park last night as club hosted terminally ill ex-Rangers player

Nov 27th 2015, 12:00 PM 50,883 Views 38 Comments

Fernando Ricksen was diagnosed with motor neuron disease in 2013.

# motor-neurone-disease - Saturday 17 October, 2015

Company director uses Linkedin to announce plans to end his own life
# Simon Binner
# Simon Binner

Company director uses Linkedin to announce plans to end his own life

Oct 17th 2015, 9:24 AM 22,552 Views 51 Comments

Simon Binner has been suffering from Motor Neuron disease since January.

# motor-neurone-disease - Monday 22 June, 2015

Remember that time we were all chucking ice water over each other?
# The June Ball
# The June Ball

Remember that time we were all chucking ice water over each other?

Jun 22nd 2015, 9:15 PM 25,819 Views 24 Comments

There are still people fighting the ‘unwinnable fight’ against MND.

# motor-neurone-disease - Saturday 6 June, 2015

This ice bucket challenge ad has caused a lot of confusion
# Motor Neurone Disease
# Motor Neurone Disease

This ice bucket challenge ad has caused a lot of confusion

Jun 6th 2015, 10:20 AM 30,332 Views 20 Comments

The wording has people questioning what it means.

# motor-neurone-disease - Friday 5 June, 2015

The wording of this charity ad has caused a lot of confusion on Twitter
# Oops
From The Daily Edge
# Oops

The wording of this charity ad has caused a lot of confusion on Twitter

Jun 5th 2015, 3:31 PM 5,774 Views 2 Comments

The Motor Neurone Disease Association ad has gotten flack on the internet.

# motor-neurone-disease - Tuesday 3 March, 2015

'We would have been very grateful if it had been cancer': The pain of Motor Neurone Disease
# Nicky McFadden
# Nicky McFadden

'We would have been very grateful if it had been cancer': The pain of Motor Neurone Disease

Mar 3rd 2015, 6:15 PM 20,980 Views 12 Comments

As the first anniversary of Nicky McFadden’s death approaches, her sister Gabrielle recalls when her family got the news of her diagnosis.

# motor-neurone-disease - Sunday 11 January, 2015

Six actors who underwent amazing transformations for movies
# New Face
# New Face

Six actors who underwent amazing transformations for movies

Jan 11th 2015, 6:30 PM 40,187 Views 56 Comments

And you thought you worked hard for the money…

# motor-neurone-disease - Tuesday 2 September, 2014

A minister did the Ice Bucket Challenge today...any guesses?
# Ice Ice Baby
# Ice Ice Baby

A minister did the Ice Bucket Challenge today...any guesses?

Sep 2nd 2014, 4:35 PM 34,825 Views 34 Comments

Will this urge the Taoiseach to take on the ice? He has been nominated several times.

# motor-neurone-disease - Thursday 28 August, 2014

Will Enda Kenny do the ice bucket challenge? We asked...
# Ice Bucket Enda
# Ice Bucket Enda

Will Enda Kenny do the ice bucket challenge? We asked...

Aug 28th 2014, 4:15 PM 16,346 Views 51 Comments

He knows he’s been nominated but it’s uncertain whether the Taoiseach is going to soak himself.

# motor-neurone-disease - Wednesday 27 August, 2014

Former Cathaoirleach of Limerick County Council dies of Motor Neurone Disease
# RIP
# RIP

Former Cathaoirleach of Limerick County Council dies of Motor Neurone Disease

Aug 27th 2014, 5:41 PM 18,830 Views 10 Comments

Mary Harty served as Cathaoirleach from 2011 to 2012.

Ice Bucket Challenge fund reaches €1 million mark in Ireland
# IMNDA
From The Daily Edge
# IMNDA

Ice Bucket Challenge fund reaches €1 million mark in Ireland

Aug 27th 2014, 1:38 PM 12,385 Views 19 Comments

Well done everyone!

The Ice Bucket Challenge: Where does the money go?
# IMNDA
# IMNDA

The Ice Bucket Challenge: Where does the money go?

Aug 27th 2014, 7:51 AM 41,106 Views 53 Comments

The Motor Neurone Disease charity lets us know…

# motor-neurone-disease - Tuesday 26 August, 2014

Poll: Have you done the Ice Bucket Challenge?
# Your Say
# Your Say

Poll: Have you done the Ice Bucket Challenge?

Aug 26th 2014, 9:05 AM 35,570 Views 147 Comments

Everyone and their granny are chucking buckets of ice water over each other. Have you?

# motor-neurone-disease - Monday 25 August, 2014

Ice Bucket Challenge raises €680k for the Irish Motor Neurone Disease Association
# Ice Bucket Challenge
From The Daily Edge
# Ice Bucket Challenge

Ice Bucket Challenge raises €680k for the Irish Motor Neurone Disease Association

Aug 25th 2014, 9:07 PM 25,795 Views 34 Comments

The clogged-up Facebook feeds have been worth it.

# motor-neurone-disease - Friday 22 August, 2014

Benedict Cumberbatch's ice bucket challenge - can he really 'break the internet'?
# The Game Is On
From The Daily Edge
# The Game Is On

Benedict Cumberbatch's ice bucket challenge - can he really 'break the internet'?

Aug 22nd 2014, 6:14 PM 36,867 Views 23 Comments

The Cult of Cumberbatch.

# motor-neurone-disease - Thursday 21 August, 2014

Michael O'Leary's ice bucket challenge is the most Michael O'Leary thing ever
# Vintage
# Vintage

Michael O'Leary's ice bucket challenge is the most Michael O'Leary thing ever

Aug 21st 2014, 11:25 PM 47,961 Views 49 Comments

Oh, and Denis O’Brien did one too.

Opinion: So... why are people suddenly chucking buckets of icy water over their heads?
# Ice Bucket Challenge
# Ice Bucket Challenge

Opinion: So... why are people suddenly chucking buckets of icy water over their heads?

Aug 21st 2014, 1:00 PM 222 Views 80 Comments

One very, very good reason.

# motor-neurone-disease - Wednesday 20 August, 2014

The co-founder of the ice bucket challenge has died in a diving accident
# Corey Griffin
# Corey Griffin

The co-founder of the ice bucket challenge has died in a diving accident

Aug 20th 2014, 4:44 PM 46,980 Views 27 Comments

The 27-year-old drowned in the early hours of Saturday morning.

# motor-neurone-disease - Tuesday 19 August, 2014

Guy with Motor Neurone Disease does an emotional ice bucket challenge
# ALS
From The Daily Edge
# ALS

Guy with Motor Neurone Disease does an emotional ice bucket challenge

Aug 19th 2014, 10:00 PM 13,468 Views 5 Comments

What’s it’s all really about.

17 essential DOs and DON'Ts of the Ice Bucket Challenge
# Brrrrrr
From The Daily Edge
# Brrrrrr

17 essential DOs and DON'Ts of the Ice Bucket Challenge

Aug 19th 2014, 1:00 PM 42,910 Views 25 Comments

Here’s how to make yours as epic as possible.

# motor-neurone-disease - Sunday 17 August, 2014

Roberty Downey Jr does the Ice Bucket Challenge, in typical RDJ fashion
# RDJ
From The Daily Edge
# RDJ

Roberty Downey Jr does the Ice Bucket Challenge, in typical RDJ fashion

Aug 17th 2014, 12:30 PM 5,761 Views 2 Comments

While sitting in a beautiful swimming pool, obvs.

# motor-neurone-disease - Thursday 14 August, 2014

Facebook's Mark Zuckerberg was challenged to dump a bucket of ice over his head... and he did it
# Brrrrrr
From The Daily Edge
# Brrrrrr

Facebook's Mark Zuckerberg was challenged to dump a bucket of ice over his head... and he did it

Aug 14th 2014, 4:45 PM 3,779 Views 2 Comments

*Like*

# motor-neurone-disease - Monday 9 June, 2014

'If only I could still dress myself': Hard hitting Motor Neurone Disease campaign launched
# Terminal Illness
# Terminal Illness

'If only I could still dress myself': Hard hitting Motor Neurone Disease campaign launched

Jun 9th 2014, 3:00 PM 11,020 Views 8 Comments

In the new adverts, Jan and Paul share their stories about their terminal disease in a hope to increase support for those living with this degenerative condition.

# motor-neurone-disease - Sunday 8 June, 2014

Opinion: 'Being stuck in a wheelchair without hands or speech is such a challenge as a mother'
# Living
# Living

Opinion: 'Being stuck in a wheelchair without hands or speech is such a challenge as a mother'

Jun 8th 2014, 12:00 PM 279 Views 4 Comments

Emma Fitzpatrick writes about how she doesn’t care for statistics – and focuses on what she CAN do, rather than what she used to be able to do.

# motor-neurone-disease - Thursday 27 March, 2014

Longford-Westmeath TD Nicky McFadden to be laid to rest today
# RIP
# RIP

Longford-Westmeath TD Nicky McFadden to be laid to rest today

Mar 27th 2014, 7:15 AM 10,045 Views 4 Comments

McFadden passed on Tuesday, following a lengthy battle with Motor Neurone disease.

# motor-neurone-disease - Friday 20 December, 2013

Gene discovery linked to why we stop feeling the clothes we wear once we’re dressed
# Memory
# Memory

Gene discovery linked to why we stop feeling the clothes we wear once we’re dressed

Dec 20th 2013, 6:45 AM 11,941 Views 35 Comments

Trinity College scientists work with fruit flies to make discovery about ‘habituation’ that could help with some neurological diseases.

# motor-neurone-disease - Friday 8 November, 2013

Fundraising begins for "extraordinary" director's first feature film
# Crowdfunding
# Crowdfunding

Fundraising begins for "extraordinary" director's first feature film

Nov 8th 2013, 7:00 AM 8,377 Views 6 Comments

Simon Fitzmaurice has Motor Neuron Disease, and is fundraising for his first feature film, My Name is Emily.

# motor-neurone-disease - Wednesday 6 November, 2013

TDs and Senators to strut their stuff on the catwalk for charity
# Strike A Pose
# Strike A Pose

TDs and Senators to strut their stuff on the catwalk for charity

Nov 6th 2013, 6:30 AM 6,880 Views 13 Comments

Dáil and Seanad members will go head to head with professional models for charity in the Shelbourne Hotel next week.

# motor-neurone-disease - Thursday 8 August, 2013

Column: How I live my life with Motor Neurone Disease
# Read Me
# Read Me

Column: How I live my life with Motor Neurone Disease

Aug 8th 2013, 7:00 AM 2,337 Views 13 Comments

Three years ago, Karl Hughes was diagnosed with Motor Neurone Disease, but he says it’s encouraged him to keep a positive mental attitude and to appreciate the time you have with your loved ones.

# motor-neurone-disease - Thursday 11 April, 2013

Stephen Hawking: We must explore space to ensure human survival
# Space Exploration
# Space Exploration

Stephen Hawking: We must explore space to ensure human survival

Apr 11th 2013, 8:10 AM 8,114 Views 37 Comments

The world’s leading physicist says our existence depends on finding a new planet to live on. No pressure, then.

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