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#Duchenne muscular dystrophy

# duchenne-muscular-dystrophy - Friday 22 February, 2019

'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking
# Translarna
# Translarna

'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking

Feb 22nd 2019, 8:38 PM 22,630 Views 5 Comments

At least five boys in Ireland have Duchenne Muscular Dystrophy, a muscle-wasting condition.

# duchenne-muscular-dystrophy - Thursday 7 September, 2017

'He’s still walking but he’s struggling': Parents fight for access to 'life-changing' drug
# Muscular Dystrophy
# Muscular Dystrophy

'He’s still walking but he’s struggling': Parents fight for access to 'life-changing' drug

Sep 7th 2017, 6:00 AM 10,354 Views 7 Comments

The families of two boys are fighting for access to Translarna, a drug that could help delay the effects of a rare muscle-wasting condition.

# duchenne-muscular-dystrophy - Saturday 13 May, 2017

Two boys fighting for access to drug that could help them keep walking

Two boys fighting for access to drug that could help them keep walking

May 13th 2017, 8:15 PM 13,910 Views 12 Comments

Translarna, the only treatment for boys with a specific type of Duchenne muscular dystrophy, costs €400,000 per patient per year.

# duchenne-muscular-dystrophy - Wednesday 7 September, 2016

'A treatment that can help my son is being denied, it's agonising'
# Duchenne Muscular Dystrophy
# Duchenne Muscular Dystrophy

'A treatment that can help my son is being denied, it's agonising'

Sep 7th 2016, 7:00 AM 14,860 Views 10 Comments

Duchenne muscular dystrophy affects approximately one in 3,500 male births.

# duchenne-muscular-dystrophy - Monday 7 September, 2015

'When I was born there was no hint of any disease'
# Duchenne Muscular Dystrophy
# Duchenne Muscular Dystrophy

'When I was born there was no hint of any disease'

Sep 7th 2015, 6:10 AM 26,257 Views 6 Comments

One in every 3,500 boys are affected by Caleb’s condition.