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#Duchenne muscular dystrophy

# duchenne-muscular-dystrophy - Friday 22 February, 2019

'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking Exclusive

At least five boys in Ireland have Duchenne Muscular Dystrophy, a muscle-wasting condition.

# duchenne-muscular-dystrophy - Thursday 7 September, 2017

'He’s still walking but he’s struggling': Parents fight for access to 'life-changing' drug

The families of two boys are fighting for access to Translarna, a drug that could help delay the effects of a rare muscle-wasting condition.

# duchenne-muscular-dystrophy - Saturday 13 May, 2017

Two boys fighting for access to drug that could help them keep walking

Translarna, the only treatment for boys with a specific type of Duchenne muscular dystrophy, costs €400,000 per patient per year.

# duchenne-muscular-dystrophy - Wednesday 7 September, 2016

'A treatment that can help my son is being denied, it's agonising'

Duchenne muscular dystrophy affects approximately one in 3,500 male births.

# duchenne-muscular-dystrophy - Monday 7 September, 2015

'When I was born there was no hint of any disease' Duchenne Muscular Dystrophy This post contains videos

'When I was born there was no hint of any disease'

One in every 3,500 boys are affected by Caleb’s condition.