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Dublin: 13°C Tuesday 16 August 2022

#Dravet syndrome

# dravet-syndrome - Tuesday 5 September, 2017

Family of Ava Twomey separated as she remains in Netherlands for medicinal cannabis treatment
# Cbd
# Cbd

Family of Ava Twomey separated as she remains in Netherlands for medicinal cannabis treatment

Sep 5th 2017, 3:31 PM 26,676 Views 57 Comments

Ava’s mother Vera led a public campaign for her daughter to access medicinal cannabis in Ireland.

# dravet-syndrome - Friday 21 April, 2017

Vera Twomey stopped at Dublin Airport attempting to bring medicinal cannabis into the country
# Medical Cannabis
# Medical Cannabis

Vera Twomey stopped at Dublin Airport attempting to bring medicinal cannabis into the country

Apr 21st 2017, 3:32 PM 50,777 Views 208 Comments

Twomey said she declared the medication and it was confiscated by customs officials.

# dravet-syndrome - Thursday 9 March, 2017

Vera Twomey urges Simon Harris to contact her after being given 'irrelevant' information to help Ava
# Medicinal Cannabis
# Medicinal Cannabis

Vera Twomey urges Simon Harris to contact her after being given 'irrelevant' information to help Ava

Mar 9th 2017, 9:59 PM 22,279 Views 51 Comments

Twomey said that, following Tuesday’s meeting in Leinster House, she was given inadequate documents by the HSE.

# dravet-syndrome - Thursday 23 February, 2017

'I'm done for, because I can't get that for Ava': Vera Twomey makes heartfelt plea in radio interview
# Medicinal Cannabis
# Medicinal Cannabis

'I'm done for, because I can't get that for Ava': Vera Twomey makes heartfelt plea in radio interview

Feb 23rd 2017, 6:18 PM 26,276 Views 71 Comments

Vera Twomey met with Health Minister Simon Harris today.

# dravet-syndrome - Monday 2 January, 2017

Cannabis ingredient to be classed as medicine in UK
# Cbd
# Cbd

Cannabis ingredient to be classed as medicine in UK

Jan 2nd 2017, 1:41 PM 13,628 Views 44 Comments

Companies wishing to sell CBD can apply for a licence from the Medicines and Healthcare products Regulatory Agency.

# dravet-syndrome - Wednesday 2 November, 2016

"If we don't get the legislation, we mightn't have Ava for much longer": A mother's 150-mile protest
# Dravet Syndrome
# Dravet Syndrome

"If we don't get the legislation, we mightn't have Ava for much longer": A mother's 150-mile protest

Nov 2nd 2016, 4:17 PM 84,911 Views 52 Comments

Six-year-old Ava has a rare condition called Dravet syndrome. Her mother Vera wants legislation approved quickly to help her.

# dravet-syndrome - Saturday 24 September, 2016

Cork family fighting for cannabis-based medicine for daughter with rare form of epilepsy
# Dravet Syndrome
# Dravet Syndrome

Cork family fighting for cannabis-based medicine for daughter with rare form of epilepsy

Sep 24th 2016, 7:20 AM 25,867 Views 51 Comments

TDs will debate medicinal cannabis use in the near future.

# dravet-syndrome - Friday 29 April, 2016

'An utter warrior': Cork family appeals for little girl to be allowed use cannabis-based medicine
# Seizures
# Seizures

'An utter warrior': Cork family appeals for little girl to be allowed use cannabis-based medicine

Apr 29th 2016, 6:30 AM 22,452 Views 124 Comments

Some 11 types of pharmaceutical medication have failed to improve Ava Barry’s condition.