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Epidermolysis bullosa, known as ‘butterfly skin’, is a genetic condition which causes blistering of the skin.
EB (epidermolysis bullosa), commonly known as butterfly skin or butterfly disease, is a genetic condition which causes the skin’s various layers to blister or break at the slightest touch.
When Emma Fogarty was born with a rare, and extremely painful, genetic skin condition, doctors said she wouldn’t live for more than a week. After years of battling the odds, she’s determined to fight to help the next generation of suffers.