Readers like you keep news free for everyone.

More than 5,000 readers have already pitched in to keep free access to The Journal.

For the price of one cup of coffee each week you can help keep paywalls away.

Not now

# butterfly children

All time

'There are days she's screaming so much we're all in tears' - parents of 'butterfly skin' children appeal to Dáil for help

EB (epidermolysis bullosa), commonly known as butterfly skin or butterfly disease, is a genetic condition which causes the skin’s various layers to blister or break at the slightest touch.

18.8k

Oct 26th 2017, 6:01 AM